HAPPY 4TH OF JULY!!!

Well, what an interesting last 2 days this has been. First off we are HOME!!! Yeah. Lauren did well with her feeds and is back up to her home routine, except the pureed. We are holding off on those, maybe tomorrow we will start out slow. Last night they started her on Naproxen for the pain and another med to keep her bowels awake and moving. They aren't really clear on what caused this. Maybe a virus, a partial blockage that resolved itself or maybe the intestines fell asleep and slowed everything down for awhile, which would certainly make her sick. Or it could be from the collar bone pain. I guess we will never really know, but at least she is better and at home.

Now, about the collar bone. Her regular Ortho-surgeon that is doing the tendon surgery came by and read the xray himself from Fridays E.R. visit. The collar bone is NOT broken, it is merely dislocated. Ouch~it would still cause lots of pain. So the doctor that read it on Friday was obviously not trained to well in collar bone/growth plates. First of all, Lauren does not have a growth plate anymore, she is too old, it has already closed!!! So anyway, she does not need surgery on it nor do they put it back in place. It is a bone that heals itself with time. She just needs to be kept comfy with meds and not move it too much. So this was all a relief. Her surgery is still on for Wednesday the 11th. Please pray for her tummy to stay well and her pain to get better. Thank you all for your continued support and prayers!!!

Well yet another not so good update. Saturday night Lauren started having tummy issues again and was not tolerating her feeds. I stopped the Nutren (milk) early and waited a couple hours and then started Pedialyte and she still was gagging and actually vomited some up. Well the concerning thing about that is Lauren should not vomit because she had a procedure to stop her from being able to do that. It's called a Nissanfundalplication!!! Because she is an aspiration risk. So off to the hospital we went late Saturday night and they did admit her. Today they ran some tests to see about a blockage or if the Nissan had come loose, but thankfully every thing is fine. So maybe it was a virus, they aren't really sure. I asked if it could be from the pain from her collar bone and they don't really think so. I know after Ryan's car accident and his broken collar bone that he was very nausea and sick to his tummy, but the doctors here don't say that's the case with Lauren.We just started Pedialyte again, very slowly. Only 10 ml an hour. They will increase by 10 ml every 3 hours. So it will take awhile to get to her usual rate of 90 an hour, but we need to make sure she tolerates it.

As far as the collar bone, it seems to really hurt when we move her, but they are keeping pain meds in her. It still stands that it will be repaired on July 11th. Hopefully she will be all over this tummy stuff by then. I will keep you all posted on her. I can use the computer here in the hospital library from 8am to 4pm. SoI will post again tomorrow. Thanks for checking in and for all the nice entries in the guestbook. I am doing better. Thanks for caring so much for us.

To all my caringbridge families, sorry for not signing in with you all lately. I do think of you daily and say my prayers for you, but just haven't had time to sign in. Please know that your always on my mind. Hope all the kids are good. Sammi, Baylie, Jonny, Isaac, Kaleb, Shawna, Reagan, baby Allison, Shannon. That's just to name a few. Take care!!!

Hi~Hope all is well with everyone. I have not been on for a few days and I apoligize. I have been very emotional the last few days and couldn't bring myself to update. I am better now, just was having very sad feelings about Lauren and how much of her life she has missed out on. I run into her old friends and see how beautiful young ladies they are becoming and all that they are accomplishing and it puts a huge whole in my heart to know that Lauren should be doing all of those things with them. I also was looking at old family photos and that really put me over the edge. Lauren was the cutest little girl and was becoming such a beautiful young lady and was so quickly robbed of it. It really hit me a few days ago and I was trying to pull myself back up and keep going.............and then the unthinkable happened again to her. She had P.T. on Friday and all went well, so we thought until I noticed a bump on her collar bone. The therapist wasn't sure what happened, Lauren didn't seem to cry out or moan. So I got her home and transfered her to her recliner, she moaned, loud!!! I just didn't like the look of it, so I packed her back up and drove to Children's in San Diego. Sure enough it is BROKEN!!! I couldn't believe my ears. It unfortunetly broke at the growth plate, so now she needs to have surgery to repair it. Yep, that's right, surgery. So on July 11th when they do her tendon lengthening they will fix the collar bone. At least that's the plan. I call clinic on Monday to confirm it all. So of course I started blaming myself for wantiing her back in therapy and the Orthopedic surgeon said it was nobodys fault, that it could have happened at anytime. She has lost bone density and muscle tone, so it was no fault to anyone. She wil probably eventually have a bone density test to see how much she has lost and what we need to do so this won't happen again. So this about sums it up for now. Hope everyone stays safe this weekend and have fun!

Love~Bonnie and Lauren

HELLO EVERYONE~

LAUREN IS DOING BETTER NOW. OF COURSE SHE WOKE UP ON SUNDAY NIGHT AROUND 10PM AND DECIDED THAT SINCE SHE JUST SLEPT FOR A WHOLE DAY SHE GOING TO STAY AWAKE ALL NIGHT. SHE WAS HAPPY AND ALERT,BUT OF COURSE I WASN'T AND WANTED TO SLEEP. ANYWAY, SHE HAS HER DAYS AND NIGHTS MIXED UP AND I AM TRYING MY HARDEST TO TURN HER AROUND. WE ARE STILL HAVING TUMMY ISSUES, BUT SHE IS STILL EATING BY MOUTH SO THAT IS GOOD. SHE WAS VERY ALERT TODAY AND SMILING ALOT, UNTIL P.T./O.T. THIS FTERNOON. SHE DID GOOD FOR P.T., BUT THEN FELL ASLEEP AND WE DID NOT GET MUCH OUT OF HERFOR O.T.BUT OTHER THAN THAT ALL IS WELL.WE ARE STARTING TO LINE UP THINGS FOR ANOTHER FUNDRAISER WHICH WILL BE IN SEPTEMBER. DETAILS WILL FOLLOW AS THEY START TO FALL IN PLACE. THANKS AGAIN EVERYONE FOR MAKING ALL OF THIS POSSIBLE. LAUREN WILL THANK US ALL ONE DAY HERSELF, I JUST KNOW IT!!!

IT SEEMS THAT LAUREN ISN'T HERSELF TODAY. SHE WENT TO BED LAST NIGHT ABOUT 10PM AND SLEPT THE WHOLE NIGHT THROUGH. YEA!!! EXCEPT SHE HAS ALSO SLEPT THE WHOLE DAY THROUGH TOO. SHE COULD NOT BE WOKEN UP TODAY FOR NOTHING. I DID ALL HER CARE, TEETH, FACE WASHED, CHANGES, EVERTHING AND ALL SHE WOULD DO A COUPLE OF TIMES WAS PEEK ONE EYE OPEN(MAYBE TO MAKE SURE IT WAS ME) AND THAT WAS IT. SHE MAYBE WAS AWAKE 1 HOUR IN THE LAST 24. SO OF COURSE THIS MEANT SHE GOT NOTHING BY MOUTH TODAY. I JUST RAN THE FEEDING PUMP SO SHE COULD GET HER NUTRITION. SHE IS ALSO A LITTLE BACKED UP! NO POO FOR 2 DAYS.(SORRY FOR TELLING LAUREN) I HOPE THIS IS NOT A SIGN THAT SHE ISN'T TOERATING HER FOOD. I WANT SO BAD TO BE ABLE TO FEED HER BY MOUTH, SO PLEASE PRAY FOR HER TO FEEL BETTER. MAYBE SHE JUST HAD A DOWN DAY. I HOPE THAT'S ALL IT IS. THANKS TO THE ONES WHO SENT EMAILS ON FUNRAISER IDEAS. I APPRECIATE IT!!